my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.
Think about this next time you think it’s just a stupid gimick
↳ andrew garfield + drunk
every time i wear a band t-shirt i think someone will recognise it and we’ll talk and stuff
YAAAY those are great! THANK YOOOU!
Sorry I couldn’t answer before, uni has been already crazy, also life, life has been crazy (good). Hah! ♥
Dear past me,
I’m sorry you had to go through so much tough stuff, but now I understand a bit better the point of it all and I must thank you, for not giving up, if it wasn’t for all the pain, I wouldn’t be myself now, everything I’ve learned from your life, is a valuable knowledge for me to carry on with mine, in such better ways. Hope to never see you again, and I know I won’t.
Dear future me,
amazing things await for you, don’t be scared to grab every opportunity you are given, and please, be more open and talkative, dammit…
Keep the good work, gurl.
first thing that comes to mind when I think about you is how much I want you to be the happiest person alive, and we both know the only way for that, and I’ll pray that you find the strenght to go follow it.
you are getting older and older but there’s still life ahead and you can live it better. I love you, and I forgive you.
I will write about the following, leave one in my ask box.
Dear person I hate,
Dear person I like,
Dear ex boyfriend,
Dear ex girlfriend,
Dear ex bestfriend,
Dear future me,
Dear past me,
Dear person I’m jealous of,
Dear person I had a crush on,
Dear [insert URL here],
You might notice that English painter Agnes Toth’s work looks incomplete. Although logic entices us to notice the missing links, Toth’s techinque aspires to find the threshold between abstract and figurative painting. Her colorful, intentionally half-finished, realistic paintings are the result.
Toth began to create these incomplete paintings in 2008. This method gave her a sense of freedom — the possibility to not feel obligated to fill in the canvas from one corner to the other. The incompleteness of her work also derives from her life philosophy, one that aims towards working and living at a slower pace. “This is what I aim to achieve with my paintings,” she says, “to get back to that harmony and contemplation, to celebrate beauty and serenity.” For Toth, one of the purposes of painting is a meditation exercise, one that requires full concentration on her creative intentions.
In a sense, her pieces provide the viewer with the possibility to become more contemplative. In trying to take everything in, we get lost in the various colorful, fragmented pieces in the hope of somehow putting it all back together.
College is viewed as a necessity, yet priced as a luxury.